2019 has been a year filled with meeting and chatting to great people, each with their own story to tell. Some people are understandably reluctant to share too much but others are open and keen to share in case theirs can help or impact the life of others who may find common ground. It’s with great pleasure that we’re able to share with you the result of one loving family sharing their story with us. We’d like to Introduce Berta and her son Isaac … Firstly Berta, thank you for taking the time to talk to us, we’re hoping we can shine a light on your NDIS experience and more specifically your son Isaac and his experience with Digeorge Syndrome. What was Isaac’s early life like and how old is he now? From the day Isaac was born, he was diagnosed with a heart murmur (a VSD), which is quite common and usually closes by the time they reach 12 months old, in Isaac’s case it hasn’t still and he is now 19 years of age. At birth he was also diagnosed with an umbilical hernia, which we were told was purely cosmetic, nothing to worry about. At 3.5 months … Continue reading Digeorge Syndrome and Isaac’s Quest for Work Beyond Graduation