Earlier this month MND Australia launched MND (Motor neurone disease) Week here in Australia, a national initiative for MND Associations across Australia, together with the wider MND community, to raise awareness of motor neurone disease, highlight the importance of advocacy, best-practice care, and promote the need for continued research to end MND.
This campaign didn’t just stop on the 8th of May however, with ongoing events around the country to get involved in, but before we dive into those, let’s have a brief look at the disease itself and what it means to those who are affected by it.
What is Motor neurone disease?
Motor neurone disease (MND) affects the nerves (motor neurones) that communicate between the brain and the muscles. As you can imagine when those muscles that enable us to move, speak, swallow and breathe begin to weaken and waste the problem is massive. MND is classified as a life-limiting disease and although MND progresses differently for each person, the average life expectancy is just 2-3 years.
Although symptoms can be managed to help the quality-of-life of sufferers and in many cases extend life expectancy, there is currently no cure.
MND can affect adults of any age, and although most cases are not linked to family, around 10% of cases are genetic, caused by an inherited genetic mutation. Statistics show that the chances of developing MND over your lifetime are roughly 1 in 300.There are a number of subtype diseases under the MND family that have mostly the same kind of symptoms. You may have heard of one of these instead; Amyotrophic Lateral Sclerosis (ALS), Progressive Muscular Atrophy (PMA), Progressive Bulbar Palsy (PBP) and Primary Lateral Sclerosis (PLS).
Now you know a little more about MND (or perhaps you even know someone directly affected by it), let’s now focus on the work MND Australia are doing to research and raise awareness around the disease …
Get Involved …
MND week was launched in Brisbane with the MND Queensland Blue Cornflower Day Tribute Ceremony held at Wilson’s Outlook in New Farm. The city was lit up in Blue, which set the backdrop for the ceremony that saw over 60 people come together to pay tribute to those battling MND while remembering those that have lost their lives to this terrible disease.
Similar events were held in locations around the country, but the week that was isn’t the end of it and we’d love for you to now get involved in spreading awareness and raising money to help find a cure.
Since MND week, the various branches of MND Australia around the country are holding events designed to do just that.
This year they’ve launched the first ever National Walk to D’Feet event at locations across Australia, that you can walk, roll or stroll into to support people living with MND.
If you’re interested, here’s a list of some of the resources you can access to decide how you can help:
- Get involved – https://www.mndaust.asn.au/Get-involved/Walk-to-D-Feet.aspx
- Adelaide – MND South Australia – https://my.mndsa.org.au/events/1/walk-to-dfeet
- Perth – MND Western Australia – https://walktodfeetmndperth2021.gofundraise.com.au/
- South-East Melbourne – MND Victoria – https://www.mnd.org.au/events/11/semelb-walk-2021
- Springfield, Qld – MND Queensland – https://www.mycause.com.au/events/walk2dfeetmndsfield2021
- The Hunter – MND NSW – https://hunter.walktodfeet.org.au/
Alternatively, you can head directly to https://www.mndaust.asnhttps://www.mndaust.asn.au/Get-involved/Walk-to-D-Feet.aspx.au and find a location near you, or google National Walk to D’Feet in your area, spread the word and get involved in an active, fun and worthy event.
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